Warrior Wednesday

Ariya, 11mths old

HLHS, severe aortic valve synostosis

This is Ariya James she is four months old and she has HLHS, severe AVS,and EFE At 6 days old the Norwood procedure done where she got the Sano stent.she had her cheat closure three days later.the next day She developed Hypoxemia requiring a BTT shunt(another OHS)to the get better blood flow which got a blood clot just a few days later which delayed her chest closure until almost three weeks later. She eventually got extubated about two weeks after that. She was able to come off of oxygen all together about two and half weeks after that.She’s had alot of trouble with feeds and eventually ended up getting a gtube placed. She finally got to go home after 6 months of being in patient and had her Glenn was in May recovered really well besides being on oxygen for two months,had a Cath where the placed another balloon and she has been off oxygen since.This little girl is a fighter and continues to show her strength each and every day 🩷