Emmett, 5mths old
Complex Single Ventricle Syndrome, Severe Pulmonary Stenosis and Atresia, Transposition of the Greater Arteries, and Dextrocardia
Our sweet boy came into the world with a huge surprise for all of us, at no time during the pregnancy did we have any indication of just how special our little warriors heart was. The first 24 hours were practically perfect in every way and then he went back for the 24 hour newborn screen and his o2 was at 55. After being life-lined to the closest children’s hospital, the next week was a whirlwind and our little guy went through so much including an infection at just 2 days old! At 3 weeks old he had his first open heart surgery, a variation of the Norwood procedure and his surgeon said he was remarkably stable and did great through the whole thing! In the weeks following he showed us just how strong he was and did so great with recovery even with getting Rhinovirus within 2 weeks of having surgery. After 2.5 long months in the hospital, he finally got to come home and if it wasn’t for the scar on his chest you wouldn’t know anything was different with our sweet boy! We have 2 more scheduled surgeries, the next of which is in January, but I have no doubt he’ll do just as great with these because he is stronger than I ever thought about being!
Charging the Storm
Even on the hardest of days and having gone through an infection at 2 days old, an open heart surgery, a g tube surgery, and rhino virus at 1 month old-his smile and giggles light up the room and got his mommy, daddy, and big brother through some of the worst days in the hospital!
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