Hospital Stay Housing
Aurora Ronald McDonald House provides temporary housing for out-of-area families needing to be near their hospitalized children at no cost to them. Their mission is to create, find and support programs that directly improve the health and wellbeing of children.
Visit at: https://rmhc-denver.org/
Mortgage/Rental Assistance
MBA Open Doors Foundation will provide mortgage/rental assistance to families with a child 18yrs or younger who is critically or chronically ill or seriously injured. The child must have at least seven days of inpatient hospital care. A family is allowed one grant. Applications must be completed and submitted by the 10th of the month to be considered for a grant for the first of the next month. This is not income based.
This program is available at participating hospitals. Click here for a complete list of participating care facilities.
Apply for a Grant at: https://www.mbaopensdoors.org/ourhospitals/apply-for-a-grant/
Colorado – Home and Community-Based Service Waivers (HCBS)
An HCBS waiver is an extra set of Health First Colorado (Colorado’s Medicaid Program) benefits that you could qualify for in certain cases. These benefits can help you remain in your home by paying you for your time to take care of your child.
Waiver Applications: https://hcpf.colorado.gov/hcbs-waivers
Remembrance Photography
Now I lay me down to sleep offers the gift of healing, hope and honor to parents experiencing the death of a baby through the overwhelming power of remembrance portraits. Their mission is to introduce remembrance photography to parents suffering the loss of a baby with a free gift of professional portraiture.
Visit at: https://www.nowilaymedowntosleep.org/
Heterotaxy Awareness & Support
Heterotaxy Connection offers online support groups where families can gather to ask questions, share knowledge and support each other. They believe that the most fundamental way to educate and empower one another is to come alongside each another as they navigate the difficult road of heterotaxy.
Visit at: https://www.heterotaxyconnection.org/
Limb Loss/Difference Awareness & Support
The Lucky Fin Project exists to raise awareness and celebrate children and individuals born with symbrachydactyly or other limb differences (upper, lower, congenital, and amputee). They create a support network for parents across the U.S. and around the world linking parents to medical information and resources. They provide education, host events and financially support efforts for children to attend specialized camps, obtain prosthetics, and to fund other organizations within the limb different community.
Visit at: https://luckyfinproject.org/
HeartWorks
HeartWorks is laser focused on CHD research and creating positive outcomes for people born with congenital heart defects. Through their revolutionary platform, they tap the best ideas and advance them through trials and onto therapies that give children and adults with CHD an opportunity to live fulfilling lives.
Visit at: https://www.heartworksinc.org/
Building the Cure Foundation
Building the Cure Foundation was created to raise awareness about Congenital Heart Disease (CHD). Their foundation will donate all proceeds to research which will someday cure complex heart defects in children. Building the Cure Foundation wants to raise the bar and create a larger awareness around CHD, increase funding for this life saving research and emphasize the importance of finding a CURE!
Visit at: https://buildingthecure.org/
Bereavement Retreat
Hayden’s House of Healing provides a safe, tranquil space for bereaved mothers, fathers, couples, children and families to heal and connect together through a variety of methods and activities offered to assist in the healing process. Founded by a heart angel mom, Hayden’s House of Healing offers a variety of retreats for anyone who has experienced the death of a child.
Visit at: https://www.haydenshouse.org/
Hearts Unite the Globe
Hearts Unite the Globe is a a 501(c)3 nonprofit organization whose mission is to empower, educate and enrich the lives of members of the congenital heart defect (CHD) and bereaved communities. Hearts Unites the Globe connects our communities through our podcasts and our podcast media channel. Our vision is a world where everyone in the CHD and bereaved communities have the support they need.
Visit at: www.heartsunitetheglobe.com