Warrior Wednesday

Berkleigh, Forever 15 days old

Heterotaxy, dextrocardia, complete AV canal with moderate AV canal regurgitation, D-TGA

Berkleigh will forever be a 15 day old. She was born at 39 weeks and rushed to CICU to get her PA band surgery to restrict some blood flow to her lungs so we could prolong her big heart surgery. She was doing amazing for 5 days, then on day 5 she contracted NEC which put a huge strain on her heart and body. Which then caused her to go into cardiac arrest at 5 days old. They were able to resuscitate her and put her on ECMO to give her heart some rest. On day 15 they were going to try to decannulate her so she could get her heart surgery but she suffered a stroke which cause multiple brain bleeds and with her heart condition she couldn’t recover. She never got to have her heart surgery but in my eyes she will forever be a heart warrior.